So it's life...

Life with a kid with special needs is indeed a special life. Bubs brings joy to most everyone who he is around. You cannot resist his smile, his laugh is contagious and his hugs are unbreakable. BUT...things aren't always easy. I have finally gotten that!

So every year we go to get his blood drawn for a yearly check for thyroid problems and leukemia. He HATES it! I cannot tell you how bad this kid HATES doctors. I would relate his fear to my fear of dying from cancer. NO JOKE. It paralyzes the kid. Fortunately the dentist, doctor, and eye doctor are used to working with my kid. If not...they would probably run when they see his name on their schedule. Well since we have lived here this whole blood thing has been a nightmare. It doesn't seem to matter how many times I tell them that he is going to hate the whole process they don't believe me. I mean it takes work to even get him in the room to draw his blood. I dread this every year because I know how badly it works him up.

So...I was hopeful this time things would be a little better for him. He is a year older. BUT...same scenario...the minute he sees the hospital he knows. We walk in and immediately have to find a bathroom for him to do both number one and two. I know that we will need to remember where the bathroom is so we can visit it a couple more times. He shivers, his heart beats fast, his hands are clammy. I just sit and hold him and try to whisper " I Love you!" He's such a quiet kid.. he doesn't scream, yell or draw too much attention to himself that way...but he does look pitiful. It's apparent to anyone around that something is "different" about this kid. Most kids his age don't have to carried to just get off the floor or the chair.


Thanks to my wonderful pediatrician I was hopeful that the actual blood draw would be better this time. He did so much research for me. He found one lady down at MCV hospital that has been drawing peds blood for 15 years! He told me how to find her and I was praying for a miracle.

We get to the lab and have to wait for this lady to come from another floor. Poor Bubs...we had to hit the bathroom in the lab again for the third time! He wouldn't sit down. He knew what was up now. He was a shriveled up mess on the floor of the lab. UGH...the germs that must be down on that floor!!! The anxiety was getting bad! Now...everyone is noticing that I am trying to just get him to move out of the doorway. He is shaking and saying something that sounds like "I scared." But most people would not understand his "code." Finally she gets there. She was a miracle worker. She stayed calm, relaxed, and quiet. She got her things ready. Told me to pin him down and in less than two minutes of screaming and yelling, she had his blood. She was even talented enough to shut the door while she held the needle in his arm. Probably a good idea that the rest of the patients not really hear what was happening.

She was wonderful to me. Bubs wasn't really as impressed with her skill but glad we were done and we could get out of this place. I made sure to tell her we would be back again next year.

So we headed for the door as fast we could after one last bathroom stop...and we were done.
Both mom and Bubs glad that we survived yet another trip to a doctor.

So this is life. Like I said...life with Bubs is special. Special but not always easy. I have gotten used to the looks and I understand them. I would probably watch too. It's a different life...but for now...I am just incredibly thankful for the lady at MCV. She doesn't know how much I appreciated her.

Our Gracie Girl

Today my baby turned three! Wow...cannot believe she's a preschooler now! Where does the time go! She's the perfect mix of all of us...and then some.

Here's some things Gracie really likes now...

anything PINK
Dance parties and pink Dora sunglasses
cupcakes and ice cream
birthdays
anything "tiny" (tiny houses...tiny food...tiny strollers...even tiny potties and sinks...)
singing
ponies and "digidas (that's what she calls princesses...don't ask...)"
polka dots
babies (pretend and real ones too)
play kitchens
coloring and playdough

Never in my life would I have thought I needed a girl but Gracie has proved me wrong...I need her! She's brought out every emotion I think I have or didn't know I had.


"Can I be a mommy one day??" Gracie asks me quite often.
"I love you so very much mommy!" While she said this she held my cheeks and kissed my head!


She's a really good dancer and singer...maybe she will be our little performer one day...I don't really know...but she's really won my heart! Can't wait to spend another three years with my baby girl.

Road trips...

Well... the Kaman house was gone again this past week on yet another road trip. It was time for our annual Savannah/Beach trip. I just don't know but think it might have been the best one yet.

Here's a few highlights...

FIRST...I got to visit with ALL of my family this time. My brother, his wife, and my niece were also visiting. I do miss that kid! Wish I could see her much more. She's grown up so much and it was great to see her playing with my kids. They love her as much as I do. Oh...and great to see my big brother and his wife too!!! Bubs was taken with Stella...very cute!

SECOND...We got to visit with Brian's sister Emily and her family. We haven't seen her in TWO years. I got to meet her newest little bundle of sweetness. He is beautiful...blond and blue eyes. Her oldest is a riot! So funny! But...poor little thing had strep throat along with his momma and was down a couple of days. He's about two years younger than Samuel and that automatically gave Samuel the opportunity to "show him the ropes."

Okay...so ALL kids slept in one room. It actually worked...AND they slept LATE! Yes...we have made it! :)

Oh...and my dad built this AWESOME play structure in the backyard and all the kids played on it. They had a blast and it meant a lot that they would build that for the grandkids!

Other highlights...

Making m&m cookies with nana, having a hermit crab for a day (it's a long story and very sad...we had to take the poor thing back after we found out we couldn't keep him...Samuel's last words about Hermie was tearfully..."That's not how I wanted him to go Mom!" Now...we have a new Hermie..who is meant for the cage we bought but I am terrified how long he will last...).

Our dolphin cruise with Aunt Patty...enjoyed so much having her...we needed her help and her company. Bubs LOVED it...the boat ride and everything. The others were entertained for about half and hour and then the heat, the boat rocking, and the hot life jackets just about did them in and I was worried we might need to hang someone overboard! :(

Seeing Grandmommy and Granddaddy again is always a blast. The kids loved seeing them and playing with them. Gracie really warmed up this time. She must have given Grandmommy a million hugs...

We found so much marine life...sand dollars, starfish, crabs, etc. Very, very fun!

There is so much to write about but I don't have the time right now...but here's some photos to enjoy...