
So most of you who know us know that every October we participate in an awareness walk for Down Syndrome. This year it wasn't the Buddy Walk...it was an event called Step UP for DOWN Syndrome. It was a fun family day of face painting, games, balloons, bounce house, pumpkins, and music. Every Down Syndrome Buddy was given a medal for participation. It is always a fun and inspiring event that we all look forward to.
So as I look back over NINE years of Buddy Walks it's amazing to see how far I have come. That's right...how far I have come. Learning to deal with a disability takes time. It's something that slaps you in the face some days and makes you crumble with humility other days. I sometimes remember the anger, sadness, and hopelessness I felt nine years ago. It seems like so long ago. God has taught me a lot along the way. I think I have learned to be humble. It's humbling to compare your nine year old with other nine year olds. They are heads taller and talk in complete sentences. I doubt most have potty accidents. But, I think I have learned to view life differently. What a precious gift that God has given us. Each one of us special and unique and deserving of love and affection. The Father chose to give us Benjamin exactly as is and I am learning to accept that and quite honestly can say wouldn't want to change him.
I am learning to be patient. It's taking a while and some days I still am not there. Dentist appointments, blood draws, irrational fears, and picky eating can try a mom's patience some days. But God has given me more than I could ask for and I am learning it is true that his grace is sufficient for me!
I am learning about unconditional love. I think Benjamin has to be the most loving child I know. My other children have never hugged and kissed me as much. They don't stroke my face and my hair and tell me they love me out of the blue on days when I truly need it. He rarely is sad, mad, or angry at anyone.
I am learning about God's glory. I see glimpses in Benjamin. He has touched lives of numerous people along the way. I can't tell you how many people tell me about how they think about Benjamin and feel like their life has been changed. God's glory is evident in all my children but somehow much more obvious in Bubs.
I never would have imagined this would be my life ten years ago when I was pregnant. There have been things I have done, said, and thought that I wouldn't have ever thought would be my life. There have been moments that I wouldn't have known would be so hard.
But...there have been people I have met I otherwise would not have without Bubs. There are moments that bring me more joy than I would have never imagined. When I hear Bubs contagious laugh or hear him say "mom...watch this..." or see him riding the bus with his brother I think my heart my explode. And there are so many things God has taught me along the way...and I could never repay Bubs for that.
I love that kid!