That's the word to describe living with a disability. I have been reading this book called Same Lake Different Boat by Stephanie Hubach. Here's how she describes relentlessness. "...an extremely unpleasant, repetitive process that, almost upon completion, is entirely undone only to be repeated perpetually. At time relentless difficulties are something we can laugh about when the intensity has ebbed. Often, though there is nothing funny about them..." I know every family with or without a disability encounters relentless behaviors but according to Hubach..." families affected by diability will find it to be more so..."
It has given me quite a bit to think about. To be honest, I don't ALWAYS think of Bubs disability. It doesn't plague my mind day in and day out as it once did when he was a baby. I see what a beautiful child he has become and I often forget that there are difficulties and struggles we face simply because of the extra chromosome. Most days he blends in with the rest of the chaos of our lives and he doesn't stick out. He is just Bubs to me...most days!
Yesterday I had one of those days when RELENTLESS is the only word to describe the difficulties.
I allowed Bubs to stay home from school to get over his sinus infection. We needed to get out and headed to Target. It was turning out to be a fun outing until we stopped to look at the PJ's. Bubs and Gracie absolutely LOVE new pj's. I suppose the excitement combined with being in the cart way to long made them very silly. They started to hide from me under the clothes rack. That's something most all kids love! I could tell it was starting to get out of hand and I asked them to get back into the cart so we could go before someone had to ask us to leave! Gracie quickly obeyed but Bubs found this all a fun game. He threw down the Pj's I had asked him to put away and ran under a rack of clothes farther from me. I could tell this was not going to be easy to get him back to the cart. Oh...did I mention I had lost my voice from a sinus infection I had just had and could not pull out the BIG voice that he usually understands means business. Well...before I knew it, he had run laughing from the children's dept into the baby aisles and as quickly as I could get there he was gone. I couldn't see him anywhere. Panic hit me and tears were flowing. I grabbed Gracie and found an associate to help me. She called a CODE YELLOW for a little boy in a Spiderman shirt. They asked me how old he was. When I told them he was eight I had to explain that he had Down Syndrome so he really looked like a five year old! Several customers rallied around to help look under the racks. Within seconds but what seemed like minutes they had found him in the MEN'S department... hiding in the racks and still laughing. His laughing turned to fear when he saw my face and my tears. I couldn't help but hold him but I was so frustrated on the inside. How could he have seen no danger in what he just did? We have punished him for running away so many times...but I still feel like it's going to take until eternity for that kid to get it...
So...I come home hoping to recover from the ordeal from earlier. Bubs decides to color. He loves to color in new coloring books. That sounds pretty tame right? Well...something possesses him today to draw with the crayons on the carpet. What in the world?? I have told him not to do that so many times before and I thought surely he understood that. So...my peaceful afternoon is spent trying to remove the crayon stains from the carpet. It isn't easy at all!
So there seems to be no end to this day...but wait there is more. Now this next disaster isn't exactly Bubs fault but he was the cause. So Samuel's latest gameis bouncing tennis balls on the roof of the garage and then counting how quickly he can catch them. Well...Bubs enjoys the same game except never really manages to get the ball on the roof. Yesterday was no different. Bubs was using a very soft training baseball. If you don't know what these are...they are very light and pretty safe...so I thought. After a few throws to the garage door I hear a shattering sound of glass. I turn around to see glass lying all over the ground and a huge hole in the garage door window. Bubs is speechless along with the other two...both waiting to see my reaction. Fortunately I was on the phone and couldn't really exclaim the words that came to my head. I sent the kids inside. Shaking my head I picked up the glass and swept the ground. How could this kid get in this much trouble today...why is life so different? Knowing that it wasn't his fault I went inside and let him know I wasn't mad at him but at the situation and that it really could not have been his fault. But seriously???
I will go back to what I have been reading. Hubach reminds us that our lives should not be about the disability and how we can overcome it, bring pity to ourselves, or ignore it. Our lives should be God focused. As long as we can keep Him in the focus then our relentless struggles will pale and we can take heart.
Here's a verse I have found some comfort in day to day...
Therefore since we are surrounded by such a great cloud of witnesses, let us throw off everything that hinders and the sin that so easily entangles, and let us run with perseverance the race marked out for us. Let us fix our eyes on Jesus the author and perfecter of our faith. Hebrews 12:1-2a
I need to daily ask God to evaluate my heart and to help put some perpespective on these relentless areas of my life. Many of us did not ask for the race they are running...disability, illness, death, financial problems... But we must run with perseverance and only with His help. It's the only solution!